My dad and I have been my mom’s primary caregivers since she was diagnosed with Alzheimer’s over three years ago. None of us were familiar with the disease or the unique challenges it would present. It’s been a real learning curve.
My dad and I are struggling to cope with a profound sense of loss, even though my mom is still with us. It seems like every day there is another change in Mom or something else she’s no longer able to do for herself. It’s so tough to witness this decline.
Do you have any suggestions for my dad and me? We want to be strong for my mom, but it’s getting more and more difficult.
Alysha in Midland, MI
Tips for Coping When a Loved One Has Alzheimer’s
When a person has Alzheimer’s or another form of dementia, their family and friends all feel the impact of the diagnosis. Alzheimer’s is frequently referred to as the long goodbye because the disease slowly robs a person of their verbal skills, memory, and independence. Like you and your dad, loved ones of people with Alzheimer’s often say they feel a deep sense of sadness, helplessness, and frustration as the disease progresses.
While the physical demands of caregiving can cause loved ones to feel exhausted, the mental toll can be equally trying. These ideas might be helpful to you and your dad:
- Join a caregiver support group: Caring for someone you love when they have Alzheimer’s is different than caring for those with other types of life-limiting illnesses. Connecting with peers in a similar situation might be beneficial. The understanding and shared experience may bring you and your dad a sense of comfort. Some people might feel more comfortable joining a virtual support group than an in-person meeting. The Alzheimer’s Association has some virtual support group ideas for you to consider.
- Live in the moment: Of all the suggestions listed, this one might be the most beneficial but also the most difficult to carry out. Instead of focusing on what your mom has lost, try to live in the present. Meet your mom where she is in this journey, which can be different every day.
- Take a break: When you are caring for a person with Alzheimer’s, the days can be hectic and stressful. Try to take time for yourself on a regular basis, even if it’s just to have lunch with a friend or take a quick walk.
- Learn to meditate: Many people find that meditation helps bring them inner peace during difficult times. If you haven’t tried it yet, there are a variety of options online for beginners. Watch Beginner’s Guide to Meditation and Guided Meditation for Seniors, Older Adults to get started.
- Try music therapy: Music offers therapeutic value to people of all ages. For people with dementia and their loved ones, it can be a way to connect after communication skills are impaired. Playing happy music might be a way for the three of you to enjoy your time together.
I hope some of these suggestions are useful to you and your dad, Alysha. I’m wishing your family all the best.
Specialized Dementia Care at Heritage Senior Communities
When a senior has been diagnosed with Alzheimer’s disease or another type of dementia, specialized care can help them live their best quality of life. From our person-centered approach to care to an environment that promotes independence, Heritage Senior Communities are leaders in the field of dementia care. Call the community nearest you to learn more and schedule a personal visit soon!